this time it will be different (really, I promise)

The nerve is growing back.

There’s no denying it. There is a reactivated trigger point near where my collar bone joins my first rib that has dutifully responded to manipulations by both my physical and massage therapists in every session in the last ten days.

About three months have passed since the nerve was burned away, and probably a few more weeks will pass before it becomes something that will need attending to. Now that I’ve been through one full cycle, I have a better idea of what to expect.  Since we’re all about learning here in the ape preserve, here’s a study guide of planned improvements for the second time around.

First, I am not going to put any more things off. Every time I pretend that my damaged shoulder is nothing more than a temporary inconvenience, I set myself up to be disappointed. Starting now, I will either do something or I will not do it, end of discussion.

It’s too frustrating and upsetting to keep confronting things I want to do, hemming and hawing over whether or not I should try to arrange to do them, and then having to push them farther and farther into the future as my shoulder fails to significantly improve.  It’s better to simply discard them until the facts on the ground change. After all, it’s unlikely I will spontaneously forget all of the things I would like to do upon becoming physically able to do them again.

This handicap is no longer a suspension of my normal condition.  This is my normal condition. My life has changed.  Not been thrown off balance, not paused for a period of time, not off to one side somewhere while this runs its course.  Changed.  As in, not the same life.  Totally different life, in fact.  Moreover, certainty is no longer possible; uncertainty is the new status quo.  No more endlessly adjusting the old routine to compensate.  It’s time for a new routine, or better yet, no routine at all.  If my pain doesn’t follow a set schedule, there’s no point in setting an activity schedule that demands constant remodeling.

Having read this far, I’d imagine you might be a wee bit skeptical. How will I, with my propensity to label, organize, compartmentalize, and stratify every last element of my life, be able to make such a wholesale realignment? You’d be right to hang on to that skepticism for a bit. It’s going to take a while to turn this boat around. I’m not wired for spontaneity; I don’t like it. I prefer routine.

I like to do everything the exact same way, in the exact same order, using the exact same tool, every single time.  I have been eating the same thing for breakfast for at least four years straight. Far from being excited when I go out of town and have to eat something else, I’m ornery about it, and happy and relieved when I get back home and can have it again.

I don’t like changing the way I do anything in any part of my life, so if I don’t have to, I won’t. This explains why my struggle to include all of the elements of my old life in the exact same proportions as they were before has yet to yield the desired result. With fewer raw ingredients at my disposal, the same recipe just won’t work any more. And like my cookie bars (of which there have now been seven batches that have gone wrong; that would be Cookie Bars: 7, Ape: 0), I kept pulling failure after failure out of the oven, every single time.

But if the solution you’ve chosen is wrong, then perfecting your technique isn’t going to make it right.  Instead of using a new recipe, I kept going back and trying to do the old one better, certain that if I could hit on the right combination of ingredients, it would work out like it used to. But the problem was the recipe itself, rather than the baker – for the bars as well as for me.

I don’t like sketching my life freehand.  I prefer to have a diagram to copy, preferably one mapped over with one-inch squares so I can follow it as closely as possible.  I didn’t trust myself to come up with appropriate responses to life’s various challenges all on my own. So I developed the habit of gauging what I was supposed to do by trying to figure out what a normal “someone else” in my position would do, another single woman my age, say, with a full-time job and a family to take care of (never mind that I don’t have those last two things), and then try to adhere to that as closely as possible. I used to get pretty close, but since last October, I haven’t been able to come anywhere near it.

This supposedly perfect woman wouldn’t leave work early because of pain, as I have done more than once, and she wouldn’t consider not going into work simply because she didn’t sleep enough the night before. She couldn’t afford to miss as much work as I’ve missed; she’d risk not being able to pay her bills, or worse, losing her job.

Nor would she have the resources to pursue doctor after doctor in an effort to achieve the best possible medical care available. She’d have to take whatever meds she got from whichever doctor she saw and that would be it. She wouldn’t be able to cultivate new pastimes, such as a blog, nor would she be able to afford a lot of the medical services I receive; she’d just have to manage as best she could.

Never mind that a “normal” person in my position probably wouldn’t have been able to keep working. Never mind that she may well have bankrupted herself pursuing all of the same treatment avenues as I have, rather than just soldiering on, gritting her teeth and ignoring the pain as best she could. None of that ever entered my mind.  All I could think was that I was failing to live up to the standards of this ideal superwoman, and thereby managed, in the overburdened emergency shelter I’ve set up in my brain for homeless anxieties, to make room for an entire city block’s worth of guilt.

This pattern and the ensuing doubt that I’m doing things “wrong” somehow has dogged me my whole life; I didn’t just learn it after I got hurt. But whether or not it served some purpose before, it’s certainly not doing me any good now.  It’s time to admit to myself that the coping mechanisms I used to use aren’t working any more.  And that means no more following patterns or diagrams, comparing myself to some idealized version of a good person I have in my head; a version, I might add, that I’ve concocted solely from source material obtained from TV and the internet which, in all likelihood, doesn’t even exist.

It means changing everything, throwing away all of those messed up cookie bars and starting over from scratch, and that’s not something I’ve been willing to do.  Even unhelpful coping is a form of coping, and if I’m coping with something, then it’s still just something that’s happened to me; it’s not something that’s permanently changed me and become a part of who I am. If I stop tilting at windmills, I won’t be coping, I’ll be living. I will have stopped fighting the assimilation of my injury, and it will have won, which means that I will have lost.

But it was never supposed to be a fight in the first place. The compressed nerve is just a thing. It’s not out to get me; it simply exists. I’m the only one doing any fighting. And I’ve been fighting for so long that I can hardly remember what kind of life I’ve been fighting to get back. It’s possible that I didn’t like it all that much. It’s probable that I just wanted to keep it because it was familiar and I knew how it worked, and like a lot of apes, if I’m forced to choose between familiarity and utility, familiarity wins every time.

Language is perception.  As long as I say this happened to me, I’m not saying this is me.  And the former is no longer applicable.  This is my life now.  I may hate it, resent it, and rail against it – often – but that isn’t going to change it or make it go away. I should know; I tried. I should take comfort in the fact that I went down swinging.  And now it’s time to pull anchor and let this boat go where it needs to go.

And this time, it will be different. Really. I promise.

About C. M. Condo

I am a late-diagnosed, high-functioning autistic living with chronic pain. I started this blog in March of 2014 as a way to try to process what was happening to me. It is my hope that by sharing it with you, we can both gain something, or at least learn something, from my experience.
This entry was posted in Aspect I and tagged , , , , , . Bookmark the permalink.

3 Responses to this time it will be different (really, I promise)

  1. Joshua Engel says:

    I feel as if I’ve forgotten a lot of things I wanted to do. I’m not sure if I ever had them, or had them and put them off to do other things. I suspect it’s the former.

    I don’t think that really tells you anything helpful. I’m really just remarking on the difference of approaches (to, uh, utterly different problems). I also like to eat different things for breakfast. I like unfamiliarity, but a very controlled unfamiliarity. I think I have an overly pessimistic estimation of risk. Or perhaps an overly accurate estimation of risk. I can afford to take more risks than I do, having the resources to buffer the losses, but the memory of the failures is far stronger than the appreciation of successes.

    Liked by 1 person

    • seemorrigan says:

      the memory of the failures is far stronger than the appreciation of successes

      So true for so many of us. How does it come about? An inherent personality feature, perhaps? A survival mechanism? Or the natural outgrowth of life experience? But it’s a thought pattern like any other, and as such, it must be amenable to change. I don’t know the secret for shining brighter lights on successes and dimmer ones on failures, but it wouldn’t surprise me if it hinges on our state of mind. It may well be just a matter of awareness as to how our states of mind are influencing our recall. Easier said than done, of course.


  2. christellsit says:

    Wow! This is a huge leap. Comparing one’s self to an ideal or a “norm” causes suffering on many levels. It is torture that wakes up with you in the morning and dogs you until you go to bed at night. You know that I’ve done it, but it’s more about superficial things like my appearance.

    After all these years, I know that I am not even close to the center of the normal spectrum. Though my goal is to get closer to that center, my place has forced me to become aware of the abundant blessings in my life. I can stack mine up against anybody’s and I’ll bet I win.

    Saying a mental “thank you” is now a habit as I notice the goodies that appear throughout the day, like hot water on demand, my thick curling hair, the way the sun comes through the kitchen window in the morning, the music of wind chimes, that my jeans zip up, flipping an egg without breaking the yolk, the purring of a cat(s), the way Cristo and Araceli zoom down the stairs when I call out “Foodie!” That I am able to make that call, that I am able to feed them myself, that I can still do my own laundry, and then there are the biggies like my precious husband, you and your sister, and, oh, what a delicious granddaughter. I could go on for pages but you get my drift.

    Yes, you have a different life now and it will be hard to keep from comparing it to the one you had. And this new life will not be static. But that you have stopped pushing against it will make it so much easier. Healing will progress sometimes audibly, sometimes so silently as to appear to have stopped. It is happening.

    I am so proud of you. You’re doing it right. You are okay. Your friends love you. Keep calling on them for help. They enjoy helping you. And I am here for you always.


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